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Resilience

Resilient.


If you're on this journey, I'm going to go ahead and make the assumption this word describes you and your child.


You are your child's biggest advocate. You are the expert and know your child better than anyone else. Period. If your parent intuition is telling you your child's needs aren't being met at school, do your homework, request a meeting, present your case to your child's team, and do not accept, "No" for an answer.


My son is in first grade and has been in public school for 4 years. I know, by law, my son has the right to a free and appropriate public education. I continue to push for appropriate goals, support services, and placement. After reviewing and disagreeing with his latest evaluation and the recommendations of the IEP team, I requested, and was granted, an Independent Educational Evaluation. My husband and I made the decision to homeschool while we work through this process. We cannot, in good conscience, subject him to an environment that is doing more harm than good anymore. It is our hope, once qualified professionals have completed their evaluation, the recommendations for educational placement will be accepted, appropriate goals will be developed, and an appropriate plan for his education will be devised.


Tourette Syndrome is NOT a well understood disorder.  It is complicated and messy and confusing for everyone who works with our children. Despite these challenges, our children deserve and have a right to a free and appropriate public education. It is federal law.


My advice to you?  Do not give in, do not give up, educate, and empower.  


I've spent hours upon hours reading and researching this disorder and the comorbids that accompany it.  Websites, research articles, books...I've probably read it.  I can assure you no one on my son's team understands the complexity of this disorder more than I.  Honestly, I really don't expect them to.  He is one in a sea of many in the school.


I do expect everyone to come to the table with open minds, open ears, and open hearts.


I will continue to educate and advocate for what is right, for not only my son, but others who are misunderstood as well. I am confident one day it will pay off immensely. It's not always easy, but we must keep at it. 


Do not be silenced.  Get back up.  Be resilient.  Persevere.




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